Wow! This is a rough one! At this rate, I think everyone is dreading her next treatments...especially if they keep ramping up like the last two.
Started out with a round of Hydrocortisone to try and reduce the rash reaction she is starting to get. Then the usual drugs...was was only about 30 minutes into the typical 4+ hour treatment and Amanda was a mess. About the time tears starting to flow because she was feeling so ill, a very kind nurse moved her into a private treatment room. Turns out this nurse use to work in a pediatric cancer ward in Hawaii for 10 years and had some interesting insights into Amanda's struggles with nausea. The fact that she is a young female and had a mother that was VERY nauseated throughout her pregnancy with Amanda pretty much puts her at the highest level of risk of severe nausea during Chemo...also muttered something about Amanda would still be treated as a pediatric patient in Hawaii, but that is another story!
Anyhow, let me see if I can remember all of the anti-emetics that they pumped down her trying to control the nausea. Ativan, Stemetil, Maxeran (we were desperate), Zophram, Gravol, and finally they sent us home with a prescription for Emend. Also really increased the Saline solution and slowed down the rate the drugs were being pushed. Can't say that the nausea was controlled, but she was not really aware of the fact she did not feel well - probably should have used a wheelchair to get her to the car as she was not walking to straight. Pretty much knocked her out until this morning!
Much of the day has been trying to control how she is feeling. We are basically pumping Dexamethasone, Zofran, Stemetil, Benadryl (yep...the rash is back!), and Gravol down her. Not really working great and getting her to drink anything is a full-time job for two - and she really needs to drink LOTS of fluids. Hopefully tomorrow will have her feeling a bit better...really would rather avoid an ER visit!
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